Wednesday, April 29, 2009

Wordless Wednesday - My cracked egg




This is an older post that I saved as a draft. I was too heartbroken at the time to put these words out there! But now- with the success we have had with nplate I can breath a sigh of relief!

For many out there today is what's called Wordless Wednesday- posting a great picture that has some meaning. This is my first post for this and it has to come with the following explanation for the true meaning to be understood. After this original post-at the advice of our doctor we went with chemo treatments and Mollie lost her beloved ponytail. For months now she has been mistaken as a boy and had a messy growing out mop! To see her with her hair fixed and looking so beautiful was unbelievable for me.


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(I posted this to Mollie's caringbridge site, sorry to duplicate)

Another ITP parent described their experience in a way that fits how I have felt for months now:

"It's like you've been handed an egg with a crack in it and been told not to break it."

How do I keep from breaking her? Better yet, how do I keep her from breaking herself? Now that Rituxan didn't work we are down to a very short list of options:

  • chemotherapy to suppress her immune system
  • nPlate (which will be FDA approved on July 23rd but the test in children are still going on)- has some side effect that concern me after using Rituxan
  • splenectomy
  • doing nothing

I've been spending a lot of time trying to research these options and any other I might find. Really I'm just running in circles because there are so few guarantees. Mollie has defied all the odds- she became one of the 20% that do not go into spontaneous remission within 6 months.

You can find more Wordless Wednesday post at

As They Grow Up
or
Wordless Wednesday


14 comments:

Sweet Annabelle said...

Wow! Thanks for sharing these photos that DO have so much meaning! I'm a cancer survivor, too - I'll be praying for you lovely daughter and rejoice with you as you "breath a sigh of relief"!

Just A Mom (Call me JAM for short) said...

Mollie is gorgeous (with or without the ponytail!)

Hope all is going well for her.

Happy WW!

Staci said...

She looks beautiful! Glad she is doing well!

Christine said...

I love the picture. She look sbeutiful, and your story just melted my heart. Thank you so much for sharing. You are indeed blessed.

kaye said...

she is beautiful

Here’s my WW hope you can stop by!

americanising desi said...

:)

Happy WW

http://eternitycallsus.blogspot.com/2009/04/memories-lost.html

Julie@Momspective said...

The two of you are amazing and strong and she is just beautiful.

Secret Mom Thoughts said...

She is beautiful. Hope she keeps doing well.

newlyweds said...

She is beautiful and so happy to hear her treatment is going so well. Saying a prayer for her and your family.

As They Grow Up said...

Thank you so much for sharing these photos and the background behind them. She is a beautiful little girl and I am so glad to hear that she is doing better

Nightowl Mama said...

God bless her. She looks absolutely amazing in her communion gown and head vail.

Shannon said...

What a beautiful girl. I am praying for her. God bless your family

Cascia said...

She is beautiful. So happy to hear that her cancer is in remission. I hope she had a wonderful First Communion.

Jenjen © GottaLoveMom said...

What a heart-felt post. Thank you for sharing.

You and your daughter's strength reflects how wondertful you are.

Jenjen
www.GottaLoveMom.com